According to Sheri, Jacob had a rough night last night. Apparently, his gas issues are making themselves known in the evening time frames, which makes him being fussy after and between his 9 and midnight feeds, and hard to get to lay down and go to sleep. Both of the kids have had gas issues all along, but especially where Jacob is concerned, the adjustment to a new environment on top of the gas makes things rough for him and for us. But, we will keep pressing along and bring the issue up to his doctor upon our next visit to see if he can make any suggestions for over the counter medication, drops, etc., or something prescribed to help him work through it. Here are a couple of pictures I snapped with my camera phone of Jacob when I got back this afternoon (I left the hospital around 2, so Sheri could come up and see Jordan, and Rae was taking a breather to go home, get some rest, go to church on Sunday and visit with Jordan).
Jordan continues to heal up from her endoscopy and bronchioscopy yesterday; no results as of yet (probably Monday). She was more alert this afternoon, but still a little worn out from the surgery, so that has kept her pretty quiet. See below, snoozing and enjoying her paci:
Jordan will have a acid reflux PH probe scheduled for Monday, which will be a tube inserted into her nose along with her feeding tube, and will stop about midway down the back of her throat. Once inserted, it will take the PH levels of when she has acid reflux episodes/aspiration (or something similar) for 24 to 36 hours. This probe study is the 2nd part of analyzing Jordan's difficulty swallowing, stridor, problems with vocal cords, and determining where exactly the reflux is coming from (above or below), then will define what kind of feeding tube Jordan will need to send her home, until such time as these issues can be worked out to allow her to take bottles again and swallow properly without choking.
Jordan's official numbers for the day are:
5 lbs. 5 oz
1 dirty diaper
5 wet diapers
0 brady episodes
0 desats
1/2 liter Nasal Cannula 21% Room Air
48 CC's fortified milk 22 cal.
0 CC residual
taken off Prevacid for acid reflux until Tuesday to allow for proper assessment of reflux symptoms (or similar)
1.2 mg. Proponalol (bloood pressure medicine)
.2 mg. Dexamethasone (restarted for a day to help bring slight swelling with vocal cords and esophagus (if any) to lower level to better place PH probe
More as it develops! Thank you for all of your love, prayers and thoughts! More progress reports soon!
Kind regards,
The Cordova Family (Andy, Sheri, Jacob & Jordan)
cell - 281-300-6212
email - maverick2601@hotmail.com
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